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Post by leteeters on Jul 16, 2014 10:14:30 GMT
Just didn't know what to tell the doc on this verapamil. What milligram to start with and where you might end up milligram wise. I have my appointment next week and I am going to give it a try. Any help is greatly appreciated thanks to everyone so far. This pain management thing gets very tiresome sometimes the meds help some other times not at all. I do believe that these two vitamins do help L-Carnitine and Creatine 189 both from GNC. If you folks haven't tried these look them up and see for yourself what they do for the muscle. Thanks ET.
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Post by Craig Lane on Jul 16, 2014 12:12:45 GMT
The two vitamins you refer to sound interesting I will have to research them.
I have been on from the start, 120mg prolonged-release verapamil which (after some initial issues light-headedness and slight nausea) give me a slight feeling of well being. This generates the temptation to do stuff I will suffer for later. Pete has had more experience with this drug and has been monitered pretty closely and can probably give you better guidance in this. Good luck with your program and I hope it helps you.
Looking at the long term I try not to increase any doseage until I really have to. I hope to be around for a while and really would like to be in a position to appreciate being here. Pain becomes part of our lives so we have to cope with it however we can, the alternative is not an alternative if you understand what I mean.
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Post by georger on Jul 17, 2014 0:51:33 GMT
Seems everyone's experience with verapamil is different, as it is with TAM itself. So this is based on my experience. We know that with all drugs it is a trade off between benefit and side effects. The problem with verapamil is that its major use is in reducing high blood pressure, so that if your BP is normal to start with it may reduce it too far so that you get light headed and may even faint, particularly when rising from sitting or lying. The way around this is to start at a low dose and have your BP monitored regularly as the dose increases. Above all you need to be patient. The results for me were spectacular, but took a year of carefully raising the dose and monitoring BP. You could start at 120mg a day as Craig has and increase as you tolerate it. Most of the benefit to me came at 300mg or so and I am on 360 now. I am very fortunate in having an excellent GP who supported me through this.
Let's know how you go. Everyone's experience adds to our knowledge.
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Post by leteeters on Jul 17, 2014 17:30:53 GMT
Thanks so much for the quick reply this will help my GP alot. It was her that kept pushing and I finally got a clear diagnoses after 5 years. Thanks again ET.
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Post by leteeters on Jul 22, 2014 20:20:30 GMT
OK seen my GP today I have 120mg verapamil tabs going to give a go and see what happens. Thanks again ET.
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Post by georger on Jul 24, 2014 1:09:07 GMT
I do not want to put anyone off Verapamil, but I should mention 2 other effects. Commonly you get constipation but this is dealt with by the usual means, maybe simply more fruit and veg.
Secondly, after 6 years I had the odd episode of increased and slightly irregular heart rate. My excellent GP explained (complete with a diagram) that my particular symptoms are harmless; Verapamil can sometimes cause the beat to be triggered early. So I am reassured but even so it is a bit disconcerting and I find that a few deep breaths set it right. If you do get any symptoms like this, it is important that you have them checked out in case they are not benign and you need to stop Verapamil.
Good on you for giving Verapamil a go. As my GP says, any treatment you try with TAM is an experiment and of course this adds to our knowledge.
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