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georger Senior Member Posts: 178	SEO Feb 5, 2019 3:41:07 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by georger on Feb 5, 2019 3:41:07 GMT Tried to register, but did not get an email in response.

kilerb
Full Member

Posts: 37

SEO Feb 5, 2019 6:55:53 GMT

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Post by kilerb on Feb 5, 2019 6:55:53 GMT

I logged in and I did see your registration... So it did work partially. I just did some tests of my own and it's not sending email to newly registered users to set their password. So, I put in a support post on their forum and I'll let you know when I figure it out! Thanks for letting me know!

kilerb Full Member Posts: 37	SEO Feb 5, 2019 19:47:50 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by kilerb on Feb 5, 2019 19:47:50 GMT Figured it out... I'm going to resend your registration links. It may go to spam. But should be in there at about this time! Thanks

Craig Lane Administrator Posts: 133	SEO Feb 5, 2019 22:23:13 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Craig Lane on Feb 5, 2019 22:23:13 GMT Started well but couldn't get a password /email verify Don't know why I'll check back again in a few hours Might be worth having a chat with Al (alcwert)(https://www.facebook.com/TAM.alcwert/) he has a TAM Facebook page.

georger
Senior Member

Posts: 178

SEO Feb 5, 2019 22:45:38 GMT

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Post by georger on Feb 5, 2019 22:45:38 GMT

I'm in. Yes the email did go to spam. What is not obvious is that you cannot accept the supplied password, it's just an example. You have to overtype your own. I didn't and had to go in again via "lost your password."

I would not like to see this forum fade in favour of the new one. They could enhance each other by cross promotion.

kilerb
Full Member

Posts: 37

SEO Feb 5, 2019 22:59:54 GMT

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Post by kilerb on Feb 5, 2019 22:59:54 GMT

Definitely... I think it's all working now. I just did a test myself with a brand new username and it sent me the link and I created the password when it prompted me. I agree. This forum has so many posts and good content. I wish it let us migrate all the posts over to the new one and I'd just give it to Craig to continue... But proboards doesn't allow that apparently. So, starting fresh was the only option.

georger Senior Member Posts: 178	SEO Oct 22, 2019 11:23:29 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by georger on Oct 22, 2019 11:23:29 GMT What happened to www.tubularaggregatemyopathy.com? Does anyone know? Google Safe Browsing says, "Deceptive Site Ahead" and Edge and IE say, "Can't reach this page."

Craig Lane Administrator Posts: 133	SEO Oct 22, 2019 21:23:52 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Craig Lane on Oct 22, 2019 21:23:52 GMT I've messaged Brian to find out what's up (apart from the sky) Will let everyone know if I find out anything.

georger Senior Member Posts: 178	SEO Nov 12, 2019 2:03:33 GMT Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by georger on Nov 12, 2019 2:03:33 GMT Checked again, same result. Definitely gone.

Shoutbox

martyjo74: Hi , I am a new member to this site and I want to say thank you to Craig Lane. I am a TAM sufferer since 2003. Finally diagnosed in August of 2004 by muscle biopsy at the University of Iowa Hospital in Iowa city, Ia. I was told back then to find a local Pr May 9, 2015 1:45:33 GMT

martyjo74: Oops, sorry sometimes my fingers don't work so well and push the wrong keys. I ended at trying to say Primary care physician. I located a pcp and he prescribed Soma,a muscle relaxer and Norco for pain. Sorry can't complete my comment right now, back later. May 9, 2015 2:18:22 GMT

srini: Hi I am a new member and I was diagnosed with TAM in 2011, I have muscle pain and I am loosing my vision. I was absolutely fine before I was put on Lipitor for Cholesterol and in 3 years time all these issues precipitated. Nov 3, 2015 1:38:47 GMT

Craig Lane: Welcome to our forum Srini. Please feel free to join in any of the posts. If you haven't already, there is a brilliant paper with a summery of TAM written by Nuttysmallholder. Any questions or answers we are all keen to read. Nov 3, 2015 13:01:03 GMT

tam2011: As srini, also diagnosed in 2011 after deep muscle biopsy. Pathological finding of tubular aggregates; fatigue and weakness (muscle and general), exercised induced fatigue, lots of pain after overdoing exercise , raised CPK level when I exercise too much. Nov 25, 2016 5:39:02 GMT

Craig Lane: Hi tam2011, Thanks for joining our forum. We hope there is some information here that can help. Contact with like sufferers can maybe help. You are not alone with this. Feel free to post on the forum . Join in with previous posts or start your own. Nov 25, 2016 20:56:00 GMT

tam2011: Thank you!! Dec 6, 2016 5:44:46 GMT

leteeters: leteeters I'm still kickin glad to see the board hasn't left me. Feb 22, 2017 19:44:55 GMT

leteeters: Hello to all new folks, hello to the old ones too. Feb 22, 2017 19:49:31 GMT

tph: Hello everyone. I was so relieved to find this forum on TAM. I have a 20 year old son who was diagnosed with TAM in February of 2015. This diagnosis is so rare that he often feels alone and like no one understands. Apr 13, 2017 1:23:09 GMT

wanbaize: Hello everyone!! My name is Nora and I just wanted to say that I am so happy to see that this forum is still alive!! My husband was diagnosed with TAM in 2014, we have been looking to meet and talk to people who unfortunately have been too!! Apr 26, 2017 16:52:35 GMT

Craig Lane: Welcome to the madhouse! Join in a thread or start your own. As there has been an increase in female members who are supporting Tamites maybe they would like to start a thread and compare notes. Share support grumbles and recipes. The Forum is here for you Apr 27, 2017 19:55:18 GMT

leteeters: Just checking in. Healthcare in the US right now is absolutely insane. I don't know what else to say at the moment. Sept 6, 2017 10:24:30 GMT

Craig Lane: Maybe I could get a job then I'd fit right in Jan 8, 2018 19:37:56 GMT

alcwert: Just checking in to let you know that I have devoted a significant portion of my Facebook pages to the exchange of information between TAM sufferers and their families. Anyone is welcome to access my Facebook page using my name (Alan Siewert) or "Tubular.. Jan 30, 2018 0:45:39 GMT

alcwert: Nice to re-connect with you, Craig. Don't know if you remember me? Jan 30, 2018 0:46:47 GMT

Craig Lane: Hi Alan, Of course I remember you, and I follow your facebook page. Jan 31, 2018 21:56:25 GMT

alcwert: Craig ... Did you read my post about the changes I have experienced? Feb 13, 2018 0:56:44 GMT

wan: Hi Guys! Just wondering if you can post alcwert Face Book post about the vitamins he has been using? I had most of the vitamins from a prescribed Mitochondrial cocktail, but ordered the rest today. Should have everything on Wednesday to get started. Feb 19, 2018 22:54:30 GMT

Craig Lane: Seems I'm not the only one to see the results of your new regime and the help it has given you. Wan is on his way to see if he has the same success. I' on a controlled diet at the moment monitoring vitamins and calories etc. Once free I'll be trying it. Jul 11, 2018 22:40:35 GMT