Yippee! DNA analysis for TAM

[larrysc]

Mar 3, 2015 22:54:39 GMT georger said:

Of course those of us interested in DNA and TAM are looking for some form of gene therapy. Here is a short newspaper article on the current status of gene therapy in general:
www.thesaturdaypaper.com.au/2015/02/21/finetuning-gene-therapy/14244372001504

Wow, to cure one disease and end up with leukemia as a byproduct, not so encouraging. Of course, maybe one day it will happen, but even the most successfully shown trial expects treatments beyond trials in 10 years. That will likely be beyond my lifetime, certainly beyond my tolerance for the pain I suffer.
I don't know about you all, I imagine I fall in the middle of the TAM pack somewhere, but last week I experienced a sudden change in TAM. While the symptoms I have began in my hands & arms all the way back in 2006, they have since been concentrated in my core muscles & legs with peripheral neuropathy responsible at least in part for the pain in my feet. Well, last week my hands were suddenly in extreme pain. Pain I cannot account for. On the pain scale I can honestly say I hit the 10, or even higher. I was prepared for the fact that in the not too distant future I would no longer be able to walk, but I was and am unprepared for not being able to use my hands. I used to paint & draw and I always thought those were my fall back activities. It does not look that way now.
Sorry for the downer, I have no one to share with that understands. Not even my wife.

[georger]

Yes medical advances are littered with missteps, but the article is overwhelmingly positive. I agree that time may not be on our side.

Larry, sorry that you have had a recent downturn. Me too. You would think that after nearly 20 years of TAM you would get used to this, but no, it always comes like a kick in the guts. Walking is not that important; many people adapt to a rich worthwhile life without it. But the hands, that is an especially big blow. I am having a look at Dragon NaturalySpeaking for typing and computer control. Will let you know how it goes. Thanks for the conversation.

[georger]

My comments on Dragon NaturallySpeaking are under the old "hands" thread.