Create Thread

General Board

Status

Subject

Created By

Replies

Views

Last Post

new	My Mutation discovered - ORAI1 and Verapamil

kilerb

148

by Craig Lane
Jun 21, 2019 19:11:21 GMT

new	Support and Understanding

tph

309

by Craig Lane
Apr 16, 2019 12:37:33 GMT

new	Stress and Flare Ups

tam2011

425

by georger
Mar 23, 2019 21:55:25 GMT

new	Questions about TAM Pages: 1 2

kilerb

768

by georger
Jan 27, 2019 2:36:52 GMT

new	How to buy CBD oil?

natalen

187

by verolla
Dec 29, 2018 17:07:21 GMT

new	Chiropractor

troyfethers

126

by Craig Lane
Jul 11, 2018 22:54:04 GMT

new	Causes of vascular dementia

account_disabled

714

by Craig Lane
Feb 14, 2018 21:18:02 GMT

new	Anonymous questionnaire

Craig Lane

174

by Craig Lane
Feb 7, 2018 21:03:18 GMT

new	yoga for our beloved elders

Deleted

128

by georger
Jun 25, 2017 2:47:43 GMT

new	alzheimer's

troyhather

110

by georger
Jun 18, 2017 0:47:34 GMT

new	Off Topic Chainsaws

leteeters

308

by Craig Lane
May 8, 2017 13:51:25 GMT

new	Welcome to new members

leteeters

112

by wan
May 7, 2017 14:45:47 GMT

new	Treatment For Patients With Metabolic Myopathy

leteeters

by leteeters
Apr 30, 2017 14:23:17 GMT

new	Still Kickin leteeters

leteeters

135

by leteeters
Feb 23, 2017 4:21:09 GMT

new

Silence

leteeters

126

by leteeters
Feb 22, 2017 19:14:27 GMT

new	2016 here we come...

Craig Lane

100

by Craig Lane
Feb 17, 2016 21:15:31 GMT

new	Welcome to 2015

Craig Lane

159

by Craig Lane
Feb 16, 2016 9:02:41 GMT

new	Conference in Washington D.C. Neuromuscular Disease

larrysc

277

by Craig Lane
Nov 19, 2015 19:22:53 GMT

new

Good news

Craig Lane

147

by georger
Aug 19, 2015 12:28:27 GMT

new	Assistive technology

georger

172

by georger
Aug 12, 2015 7:05:34 GMT

Legend

Thread

Announcement

Sticky

Locked

new New

Poll

Bookmark

Board Information & Statistics

General Board

You can talk about anything (Relevant) here

Threads and Posts
Total Threads:	72
Total Posts:	508
This board has 1 moderator

On This Board
You cannot create threads.
You cannot reply to threads.
You cannot create polls.

Users Viewing
0 Staff, 0 Members, 1 Guest.

Shoutbox

martyjo74: Hi , I am a new member to this site and I want to say thank you to Craig Lane. I am a TAM sufferer since 2003. Finally diagnosed in August of 2004 by muscle biopsy at the University of Iowa Hospital in Iowa city, Ia. I was told back then to find a local Pr May 9, 2015 1:45:33 GMT

martyjo74: Oops, sorry sometimes my fingers don't work so well and push the wrong keys. I ended at trying to say Primary care physician. I located a pcp and he prescribed Soma,a muscle relaxer and Norco for pain. Sorry can't complete my comment right now, back later. May 9, 2015 2:18:22 GMT

srini: Hi I am a new member and I was diagnosed with TAM in 2011, I have muscle pain and I am loosing my vision. I was absolutely fine before I was put on Lipitor for Cholesterol and in 3 years time all these issues precipitated. Nov 3, 2015 1:38:47 GMT

Craig Lane: Welcome to our forum Srini. Please feel free to join in any of the posts. If you haven't already, there is a brilliant paper with a summery of TAM written by Nuttysmallholder. Any questions or answers we are all keen to read. Nov 3, 2015 13:01:03 GMT

tam2011: As srini, also diagnosed in 2011 after deep muscle biopsy. Pathological finding of tubular aggregates; fatigue and weakness (muscle and general), exercised induced fatigue, lots of pain after overdoing exercise , raised CPK level when I exercise too much. Nov 25, 2016 5:39:02 GMT

Craig Lane: Hi tam2011, Thanks for joining our forum. We hope there is some information here that can help. Contact with like sufferers can maybe help. You are not alone with this. Feel free to post on the forum . Join in with previous posts or start your own. Nov 25, 2016 20:56:00 GMT

tam2011: Thank you!! Dec 6, 2016 5:44:46 GMT

leteeters: leteeters I'm still kickin glad to see the board hasn't left me. Feb 22, 2017 19:44:55 GMT

leteeters: Hello to all new folks, hello to the old ones too. Feb 22, 2017 19:49:31 GMT

tph: Hello everyone. I was so relieved to find this forum on TAM. I have a 20 year old son who was diagnosed with TAM in February of 2015. This diagnosis is so rare that he often feels alone and like no one understands. Apr 13, 2017 1:23:09 GMT

wanbaize: Hello everyone!! My name is Nora and I just wanted to say that I am so happy to see that this forum is still alive!! My husband was diagnosed with TAM in 2014, we have been looking to meet and talk to people who unfortunately have been too!! Apr 26, 2017 16:52:35 GMT

Craig Lane: Welcome to the madhouse! Join in a thread or start your own. As there has been an increase in female members who are supporting Tamites maybe they would like to start a thread and compare notes. Share support grumbles and recipes. The Forum is here for you Apr 27, 2017 19:55:18 GMT

leteeters: Just checking in. Healthcare in the US right now is absolutely insane. I don't know what else to say at the moment. Sept 6, 2017 10:24:30 GMT

Craig Lane: Maybe I could get a job then I'd fit right in Jan 8, 2018 19:37:56 GMT

alcwert: Just checking in to let you know that I have devoted a significant portion of my Facebook pages to the exchange of information between TAM sufferers and their families. Anyone is welcome to access my Facebook page using my name (Alan Siewert) or "Tubular.. Jan 30, 2018 0:45:39 GMT

alcwert: Nice to re-connect with you, Craig. Don't know if you remember me? Jan 30, 2018 0:46:47 GMT

Craig Lane: Hi Alan, Of course I remember you, and I follow your facebook page. Jan 31, 2018 21:56:25 GMT

alcwert: Craig ... Did you read my post about the changes I have experienced? Feb 13, 2018 0:56:44 GMT

wan: Hi Guys! Just wondering if you can post alcwert Face Book post about the vitamins he has been using? I had most of the vitamins from a prescribed Mitochondrial cocktail, but ordered the rest today. Should have everything on Wednesday to get started. Feb 19, 2018 22:54:30 GMT

Craig Lane: Seems I'm not the only one to see the results of your new regime and the help it has given you. Wan is on his way to see if he has the same success. I' on a controlled diet at the moment monitoring vitamins and calories etc. Once free I'll be trying it. Jul 11, 2018 22:40:35 GMT