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 1 4 TAM summery Thanks to Nuttysmallholder.
by leteeters
Feb 22, 2017 19:57:38 GMT
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72 509 Is anyone still here?
by georger
May 30, 2024 6:15:18 GMT
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 1 1 Start Here
by Craig Lane
Nov 29, 2006 13:10:57 GMT

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martyjo74: Hi , I am a new member to this site and I want to say thank you to Craig Lane. I am a TAM sufferer since 2003. Finally diagnosed in August of 2004 by muscle biopsy at the University of Iowa Hospital in Iowa city, Ia. I was told back then to find a local Pr May 9, 2015 1:45:33 GMT
martyjo74: Oops, sorry sometimes my fingers don't work so well and push the wrong keys. I ended at trying to say Primary care physician. I located a pcp and he prescribed Soma,a muscle relaxer and Norco for pain. Sorry can't complete my comment right now, back later. May 9, 2015 2:18:22 GMT
srini: Hi I am a new member and I was diagnosed with TAM in 2011, I have muscle pain and I am loosing my vision. I was absolutely fine before I was put on Lipitor for Cholesterol and in 3 years time all these issues precipitated. Nov 3, 2015 1:38:47 GMT
Craig Lane: Welcome to our forum Srini. Please feel free to join in any of the posts. If you haven't already, there is a brilliant paper with a summery of TAM written by Nuttysmallholder. Any questions or answers we are all keen to read. Nov 3, 2015 13:01:03 GMT
tam2011: As srini, also diagnosed in 2011 after deep muscle biopsy. Pathological finding of tubular aggregates; fatigue and weakness (muscle and general), exercised induced fatigue, lots of pain after overdoing exercise , raised CPK level when I exercise too much. Nov 25, 2016 5:39:02 GMT
Craig Lane: Hi tam2011, Thanks for joining our forum. We hope there is some information here that can help. Contact with like sufferers can maybe help. You are not alone with this. Feel free to post on the forum . Join in with previous posts or start your own. Nov 25, 2016 20:56:00 GMT
tam2011: Thank you!! Dec 6, 2016 5:44:46 GMT
leteeters: leteeters I'm still kickin glad to see the board hasn't left me. Feb 22, 2017 19:44:55 GMT
leteeters: Hello to all new folks, hello to the old ones too. Feb 22, 2017 19:49:31 GMT
tph: Hello everyone. I was so relieved to find this forum on TAM. I have a 20 year old son who was diagnosed with TAM in February of 2015. This diagnosis is so rare that he often feels alone and like no one understands. Apr 13, 2017 1:23:09 GMT
wanbaize: Hello everyone!! My name is Nora and I just wanted to say that I am so happy to see that this forum is still alive!! My husband was diagnosed with TAM in 2014, we have been looking to meet and talk to people who unfortunately have been too!! Apr 26, 2017 16:52:35 GMT
Craig Lane: Welcome to the madhouse! Join in a thread or start your own. As there has been an increase in female members who are supporting Tamites maybe they would like to start a thread and compare notes. Share support grumbles and recipes. The Forum is here for you Apr 27, 2017 19:55:18 GMT
leteeters: Just checking in. Healthcare in the US right now is absolutely insane. I don't know what else to say at the moment. Sept 6, 2017 10:24:30 GMT
Craig Lane: Maybe I could get a job then I'd fit right in Jan 8, 2018 19:37:56 GMT
alcwert: Just checking in to let you know that I have devoted a significant portion of my Facebook pages to the exchange of information between TAM sufferers and their families. Anyone is welcome to access my Facebook page using my name (Alan Siewert) or "Tubular.. Jan 30, 2018 0:45:39 GMT
alcwert: Nice to re-connect with you, Craig. Don't know if you remember me? Jan 30, 2018 0:46:47 GMT
Craig Lane: Hi Alan, Of course I remember you, and I follow your facebook page. Jan 31, 2018 21:56:25 GMT
alcwert: Craig ... Did you read my post about the changes I have experienced? Feb 13, 2018 0:56:44 GMT
wan: Hi Guys! Just wondering if you can post alcwert Face Book post about the vitamins he has been using? I had most of the vitamins from a prescribed Mitochondrial cocktail, but ordered the rest today. Should have everything on Wednesday to get started. Feb 19, 2018 22:54:30 GMT
Craig Lane: Seems I'm not the only one to see the results of your new regime and the help it has given you. Wan is on his way to see if he has the same success. I' on a controlled diet at the moment monitoring vitamins and calories etc. Once free I'll be trying it. Jul 11, 2018 22:40:35 GMT
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